Verena, a Deaf-Blind childResources for working with Deaf-Blind people1

David Bar-Tzur

Created 26 October 1999, links updated monthly with the help of LinkAlarm.

Access/Communication methods/Interpreting Advocacy Assisted living devices Books Camps
Deaf-Blind community/culture Deaf-Blind history Deaf-Blind poetry Deaf-Blind tactile / visual arts Education for Deaf-Blind interpreters
Education for Deaf-Blind people Ethics General information Guide dogs History
Journals, newspapers, and newsletters Mailing lists Organizations Orientation and mobility Usher syndrome and other causes of Deaf-Blindness
Videotapes Web sites (International)

Note: A flag next to a link shows what language the website is in. If it is followed by this icon: (video camera: This links to a video), it is a video in that spoken language. If it is followed by this icon: Sign Language icon, it is in the sign language of that country. If a globe is followed by this hands icon, there is an animated text in International Gesture.


mechanical fingerspeller Access/Communication methods/Interpreting2

stained glass ballAnnala, L. (1980). Aspects of interpreting for deaf-visually impaired and deaf-blind people. Proceedings of the 1980 RID Convention, (pp. 97-101). Cincinnati, Ohio.

stained glass ballAviation consumer protection. Discusses the rights of DeafBlind people to travel independently (alone) on airlines and other matters. See also Plane talk - Fact sheets on disabilities issues.

stained glass ballBar-Tzur, D.

Deaf-Blind interpreting pay differential.
Interpreting and working with Deaf-Blind people.
Technical & specialized vocabulary ASL dictionary. Over 15,000 entries. The dictionary is set up in major categories and further subdivided into categories making navigation as simple as point and click and each entry shows David as the sign model signing the term. This includes 50 terms for Deaf-Blindness. To order.

stained glass ballBlaha, R. and B. Carlson (n.d.) Issues regarding the assessment of vision loss in regard to Sign Language and fingerspelling for the student with Deaf-Blindness. This article offers some advice on how to modify fingerspelling for the Deafblind child.

stained glass ballCalifornia Deaf Blind Services: Fact sheet on the Tadoma Method.

stained glass ballCollins, S. D. (1993). Deaf-Blind interpreting: The structure of ASL and the interpreting process. In B. Winston Communication Forum: Vol. 2. (pp. 20-36). Washington, D. C., Gallaudet Publications.

stained glass ballDB-LINK. Communication.

stained glass ballDeaf-Blind freedom -- How far? is a discussion on the moral and ethical boundaries between the Deaf-Blind community and SSPs.

stained glass ballDeafblind International. Developments and innovations in interpreting for Deafblind people.

stained glass ballDeafblind intervener - Paraprofessional A (Texas).

stained glass ballDewhurst, D, C. Vuphonics.Experimental sensory-substitution system, a new approach to refreshable tactile display design, a design for a website for providing distant interpretation and mobility assistance for blind people.

stained glass ballGasaway, M. & S. Lascek. (April-June 2003). What makes a good SSP and a good Deaf-Blind consumer?

stained glass ballGeneral guidelines when meeting a Deafblind person.

stained glass ballGoujon, J. D. (11 November 2000). Interpreting in a Deaf-Blind setting.

stained glass ballGreenfield, R., Ford, J, and Fredericks, B. (1997). Communication: A manual for Volume III of the "You & me" video series. Monmouth, OR: Teaching Research. This manual accompanies the third of five videos that describe the education of a child who is deaf-blind. The video portrays Riley Ford, who is totally blind and has a profound hearing loss, and examines the concepts, skills and supports that are necessary for building an effective communication system for children who are deaf-blind. In the video, some of the techniques Riley's interpreter-tutor uses with him at school are discussed. The video and manual may be ordered from Teaching Research, Western Oregon University, 345 N. Monmouth Ave., Monmouth, OR 97361, (503) 838-8391. Fax: (503) 838-8150. The cost is $15.00. The video may be open captioned on request.

stained glass ballHow braille began.

stained glass ballJensema, C. K. (1979). A review of communication systems used by deaf-blind people: Part 1. American Annals of the Deaf, 124, 392-394.

stained glass ballLevin, D. (November 2001). Interpreting for Deafblind medical settings: Surgery.

stained glass ballLowVision.org. Deaf Blind information.

stained glass ballMeasuring the dimensions of sensory communication at RLE. (Spring 1993)

stained glass ballMetcalf, C. (21 November 2001). Medical consent and Deafblind patients.

stained glass ballMorgan, S. Sign Language with people who are Deaf-Blind: Suggestions for tactile and visual modifications. Succint but well-thought-out.

stained glass ballMorris, P. (2001). Dealing with multiple roles. CD-ROM, Signs of Development, Inc.

stained glass ballMortensen, O. E. (June 1999) A guided tour of the research on deafblind communication in 45 min.

stained glass ballNorthwestern Connecticut Community College. National curriculum: An introduction to working and socializing with people who are Deaf-Blind. 208-page book, 384-page large print book, 72-minute video, 50-minute video, ASCII disk. ISBN: 1-58121-026-4. In braille. The materials include activities and programs that can be adapted for use in a multitude of settings to encourage a better understanding of the Deaf-Blind community. The two-video set offers five informative, easy-to-understand programs: - The Deaf-Blind community experience - Understanding technology used by people who are Deaf-Blind - Sighted guide techniques with people who are Deaf-Blind - Tactile communication methods and techniques - Interpreting adjustments.

stained glass ballO'Brien, S. and Steffen, C. (1996). Tactile ASL: ASL as used by Deaf-Blind persons. In L. Byers and M. Rose Communication Forum: Vol. 5. (pp. 145-158). Washington, D. C., Gallaudet Publications.

stained glass ballReed, C.

golden marble bulletRobotic Alphabet: A Finger Spelling Hand. A fourth generation computer-controlled electromechanical fingerspelling hand called Ralph (for Robotic Alphabet) has been developed at the Rehab R&D Center. The device offers deaf-blind individuals improved access to computers and communication devices in addition to person-to-person conversations. Enhancements in this design include better intelligibility, smaller size, and the ability to optimize hand positions.

golden marble bulletThe implications of the Tadoma method of speechreading for spoken language processing. Downloadable text.

stained glass ballSmith, C. M. Human factors in haptic interfaces. How information is transmitted through touch.

stained glass ballStrategies for inclusion: Creating a synagogue that is Blind/Deaf friendly.

stained glass ballTan, H. Z.

golden marble bullet(1996) Information transmission with a multi-finger tactual display. [abstract]

golden marble bullet, W. M. Rabinowitz, and N. I. Durlach (1989). Analysis of a synthetic Tadoma system as a multidimensional tactile display.

stained glass ballThe Lorm Deafblind manual alphabet.

stained glass ballThink dual sensory: Good practice guidelines for older people with dual sensory loss (UK). Downloadable pdf file.

stained glass ballWilson, R. M. (December 1998 Revised). Receptive communication: How children understand your messages to them.

Advocacy

stained glass ballDeafblindInfo.org. Tools for independence.

CCTVAssisted living devices

stained glass ballAdvance Corporation Braille-Tac Division. Architecturally designed interior/exterior way-finding sign systems and standard & custom ADA compliant signs.

Stained glass bulletAssistive Technology - Independent Living Technologies. Communication, Hearing, Vision, Mobility, Ergonomics, Furniture, Lighting, Workstations, Software, Switches, Learning & Classroom, Bathroom, Keyboards & Mice, Kitchen & Household, Toys & Recreation, Personal Safety.

stained glass ballBeyond Sight.

stained glass ballBlind & Deaf telecommunicators, display terminals (TDD).

stained glass ballDeafblind/Visually impaired & Multiply Impaired. Articles, primarily on assistive living devices and education.

stained glass ballGill, J. Dual sensory impairment - Devices for Deafblind people.

stained glass ballHearMore.com. Offers products to help the hearing impaired. Find amplified phones, TTY, TDD, alert systems, amplification devices, vibrators, door sensors, watches, books, and videos.

stained glass ballHelen Keller National Center, Older Adult Program - A Guide to Aids and Devices Used By Individuals Experiencing Combined Vision and Hearing Loss.

stained glass ballIndependent Living Aids, Inc.

stained glass ballLargePrintReviews.com. Products for the blind and visually impaired and other features.

stained glass ballLions Afforadable Hearing Aid Project (Lions AHAP) fact sheet. Responding to a worldwide problem, the Lions Affordable Hearing Aid Project (AHAP) has developed a low cost, high quality hearing aid.

stained glass ballLS&S Group.

stained glass ballMaxi-Aids.

stained glass ballProducts for the visually impaired.

stained glass ballSpeech to braille computer interpreter.

stained glass ballSpringerLink - Book. Assistive Technology for the Hearing-impaired, Deaf and Deafblind.

stained glass ballTelesensory Low Vision Solutions.

stained glass ballTiresias: Devices for blind and partially sighted people.

stained glass ballThe Traveller is an electronic travel aid. It combines a straight-walker, a compass, an obstacle alarm, and a queue-minder. Worn high on the user's chest rather than hand-held, The Traveller provides hands-free and open-ear operation that is not affected by a user's cane or dog.

stained glass ballVision Advantage, Inc.

stained glass ballVision Dynamics.

stained glass ballWriting Spot: Braille writer.

Books

stained glass ballAmerican Printing House for the Blind.

stained glass ballBlasch, B. B. (ed.), Wiener, W. R. (ed.), Welsh, R. L. (ed.). (November 1997). Foundations of orientation and mobility American Foundation for the Blind. ISBN: 0891289461.

stained glass ballBrennan, M. (December 1983). Show me how: A manual for parents of preschool visually impaired and blind children. American Foundation for the Blind. ISBN: 0891281134.

stained glass ballDodson-Burk, B., Hill, E. W. & Dobson-Burk, B. (September 1989). An orientation and mobility primer for families and young children. American Foundation for the Blind. ISBN: 0891281576.

stained glass ballDoods, A. (August 1993). Rehabilitating blind and visually impaired people. Singular Publishing Group. ASIN: 156593153X.

stained glass ballEtheridge, D. (April 1995). Education of dual sensory impaired children: Recognizing and developing ability. Taylor & Francis. ISBN: 1853463353.

stained glass ballEverson, J. M. (January 1995). Supporting young adults who are Deaf-Blind in their communities: A transition planning guide for service providers, families, and friends. Paul H. Brookes Publishing Co. ISBN: 1557661618.

stained glass ballFoy, C. J. (September 1991). English-Spanish basics for orientation and mobility instructors. American Foundation for the Blind. ISBN: 0891281924.

stained glass ballGoode, D. & Zola, I. K. (September 1994). A world without words: The social construction of children born deaf and blind. Temple University Press. ISBN: 1566392160.

stained glass ballGoodman, W. (April 1989). Mobility training for people with disabilities: Children and adults with physical, mental, visual, and hearing impairments can learn to travel. Charles C. Thomas Pub Ltd. ISBN: 0398055726.

stained glass ballHaring, N. G. & Romer, L. T. (December 1995). Welcoming students who are Deaf-Blind into typical classrooms: Facilitating school participation, learning, and friendship. Paul H. Brookes Publishing Co. ISBN: 1557661448.

stained glass ballHeubner, K. M. (ed.), Prickett, J. G. (ed.), Rafalowski Welch, T. (ed.). (March 1995). Hand in hand: Essentials of communication and orientation and mobility for your students who are Deaf-Blind. American Foundation for the Blind. ISBN: 0891289372.

stained glass ballHill, E. W. & Ponder, P. (December 1976). Orientation and mobility techniques: A guide for the practitioner. American Foundation for the Blind. ISBN: 0891280014.

stained glass ballJacobson, W. H. (November 1993). The art and science of teaching orientation and mobility to persons with visual impairments. American Foundation for the Blind. ISBN: 0891282459.

stained glass ballJones, C. J. (December 1988). Evaluation and educational programming of deaf blind/severely multihandicapped students: Sensorimotor stage. Charles C. Thomas Publishing Ltd. ISBN: 0398055157.

stained glass ballJurgens, M. R. (December 1977). Confrontation between the young deaf-blind child and the outer world. Swets & Zeitlinger. ISBN: 9026502613.

Stained glass bulletKeller, Helen: Books by and about.

stained glass ballLargePrintReviews.com. Reviews of large print books and audio books, low vision software evaluations, and other items of interest to individuals with low vision. There are also articles on eye health, eye diseases and disorders, accessibility issues, literature, products for the blind and visually impaired, plus travel articles and travel tips.

stained glass ballMcInnes, J. M. (June 1999). A guide to planning and support for individuals who are Deafblind. University of Toronto Press. ISBN: 0802042422.

stained glass ballPogrund, A. L. (August 1993). Teaching age-appropriate purposeful skills: An orientation & mobility curriculum for students with visual impairments. Texas School for the Blind. ISBN: 188036610X.

stained glass ballSauerburger, D. (July 1993). Independence without sight or sound: Suggestions for practitioners working with Deaf-Blind adults. American Foundation for the Blind. ISBN: 0891282467.

stained glass ballSmith, T. B. (October 1994). Guidelines: Practical tips for working & socializing with Deaf-Blind people. Linstok Press. ISBN: 1881133060.

stained glass ballTreffry, J. A. (December 1994). Deaf-blind infants and children: A developmental guide. Publisher: University of Toronto Press, reprint edition. ISBN: 0802077870.

stained glass ballWalsh. (September 1981). Understanding and educating the Deaf-Blind, severely and profoundly handicapped: An international perspective. Charles C. Thomas Publishing Ltd. ISBN: 0398045143.

Camps

stained glass ballCamp Abilities: A loss of sight, but never a loss of vision - New York.

stained glass ballCamp Pacifica - California.

stained glass ballCamp Summit - Texas.

stained glass ballDeaf-Blind Access of the South.

stained glass ballLions Camp Merrick - Maryland.

stained glass ballMiVoden - Idaho.

stained glass ball2001 Summer camps for children who are Deaf or Hard of Hearing. You will need Acrobat Reader and then search for Deaf and Blind camps.

Smithdas and Dowdy signing in unison through the Tadoma methodDeaf-Blind community/culture 3

stained glass ballBar-Tzur, D. Humor and stories for interpreters: Deaf-Blind folk.

stained glass ballClark, J. L.

golden marble bullet(2005, January-March). Personal perspective: Being more DeafBlind. The Deaf-Blind American, 44, 1. pp. 31-35. "Barriers should not prevent one from self-identification, from wanting to be as Deaf-Blind as one can be. Yet my attitude is rare, and people who are deaf-blind are ambivalent about their identity." Webmaster: The last two pages are a poem, "To a much younger myself", but fit so well into the preceding essay that they seem an integral part of it, whether intentional or not, I do not know.
golden marble bulletWith and within Us: The DeafBlind gift.

stained glass ball Deafblindinfo.org.

stained glass ballDouble impact.

stained glass ballGallagher, G. (3 July 1997) Terminology - Deafblind, Deaf/Blind or Deaf-Blind?

Goff Paris, D. & S. K. Wood (eds). (2002). Step into the circle. American Indians, Alaska Natives and First Nations people who are deaf, deaf-blind and hard of hearing are a diverse group. This 8.5" by 11" soft cover book is a tribute to these cultures, with over 100 contributions. Includes photographs, artwork, poems, biographies and autobiographies. The book cover was designed by famed artist Tony Landon McGregor. (Deaf author)

Heidi Zimmer - Deaf Mountaineer. Heidi Zimmer, a Deaf woman who has Usher syndrome, has a major goal: climbing to the top of the Seven Summits (the highest peak on each continent). As a Deaf female mountaineer, Zimmer serves as a role model and inspiration to many. Zimmer also has several other goals: To become the oldest woman to climb Mt. Everest. To be the first disabled woman climber to complete all Seven Summits. To be the first disabled woman, the first Deaf and Usher Syndrome climber to climb Mt. Everest. To inspire others to pursue their dreams.

stained glass ballHyatt, G. W. (2000, April 5). Web empowers a Deaf-Blind individual.

stained glass ballIdentity. What am I: Deaf with a vision loss? Blind with a hearing loss? DeafBlind?

stained glass ballKelleher, D. (1996) Driving with low vision.

stained glass ballKruppenbacher, F. A. (Spring / Summer 2005). Alumni profiles: Arthur Babin. Scroll down to page 14.

stained glass ballLanata, F. (2005, January-March). Teen corner: My college essay. The Deaf-Blind American, 44, 1. pp. 36-37. [M]y eye doctor diagnosed me with Usher Syndrome. I was forced with a new challenge, and I have never bneen one to shy away from a challenge. On a different plane I was thankful. It gave me new eyes; I developed a true love for passionate colors, melodious music, nature, and humans. Whereas before I wandered through life with a sheet of ice in my eyes, it began to melt, illuminating the true vision of the world.

stained glass ballMetcalf, C. (2005, January-March). Coping: Psychological and social issues of children with Type I Usher Syndrome. The Deaf-Blind American, 44, 1. pp. 38-44. "This paper seeks to help the reader identify better with children who have Usher Syndrome by exploring the physical and psychological dimensions of the disorder." Webmaster: The author has Usher Syndrome Type I himself and blend the cultural and pathological perspectives in an interesting way.

stained glass ballMiller, M. (June 17, 2006). The Blind-Deaf tech wiz, one man is inventing technology to lead an independent life - CBS News. It's hard to think of anyone who stands to gain more from technological innovation than those who have lost their hearing and sight. People like Anindya Bhattacharyya, who is both blind and deaf. He has a mission: to live as independently as possible and to change the lives of hundreds of thousands of people like himself throughout the world.

stained glass ballMoss, K. (Winter 1998). Driving with Usher Syndrome.

stained glass ballNew Jersey Association of the Deaf Blind. To improve the quality of life of people who are deaf and/or blind.

stained glass ballOvenell-Carter, J. (June 15, 2000) Long path to graduation.

stained glass ballSignOnSanDiego.com > Special Reports > Unbreakable Lives. The Stone family could have given up when they discovered the terrifying genetic time bomb of Usher syndrome facing their children. Instead, they met the challenges head-on, embarking on a journey not just to cope, but to transcend and to thrive.

stained glass ballUsher Life stories.

Deaf-Blind poetry

stained glass ballD & B poetry.

stained glass ballThe Poetry Page by and for Deafblind People.

Deaf-Blind tactile / visual arts

stained glass ballThe Gallery. Artwork produced by deafblind people.

stained glass ballJust wondering outloud. (2005, August 25). Unique touch art.

stained glass ballSiegal, B. Unique Touch Art.

Man in cap and gownEducation for Deaf-Blind interpreters

stained glass ballDeafWeb Washington: Sign Language, Interpreting, and Captioning Resources. Scroll down to "American Sign Language/Interpreting School (ASLIS) of Seattle."

stained glass ballConferences, courses, events, seminars, and workshops throughout the world about Deafblindness.

stained glass ballNortheastern University (Boston, Massachusetts).

stained glass ballThe Jewish Guild for the Blind - Resources. Webmaster: If you want to train interpreters / intervenors / SSSs, they offer Vision Simulator Cards: An interactive vision simulator that allows the user to experience the impact on vision of the four most common eye diseases: cataract, glaucoma, macular degeneration and diabetic retinopathy. You could use these with rubber bands and a blindfold for one eye to simulate various forms of blindness during practice guiding. The cheapest way to make blindfolds is to but long socks and safety pins and have the "blind" person's guide safety pin the sock over both eyes, or one eye if they will use a simulator card and a rubber band for the other eye.

Education for Deaf-Blind people

stained glass ball2008 CEC Presentation Materials. Applying a Transdisciplinary Team Approach to the Systematic Instruction of Pivotal Milestones; Cochlear Implants: A Paradigm Shift for Children with Deaf-Blindness; Cochlear Implants & Multiple Disabilities: What We've Learned So Far; Developmental Milestones in Young Children and Infants with Deafblindness; Preparing Deaf-Blind Interveners: Teaching a Contact Position On-Line; Single-Subject Designs and the Field of Deafblindness; Teacher Efficacy in Special Education: Development of a Measure of Teachers’ Self-Efficacy in Deafblindness Education.

stained glass ballClymer, E. W. & Wallber, M. J. (June 1996). Classroom material preparation for low-vision students. Requires Adobe Acrobat.

stained glass ballDB-LINK Library.

stained glass ballDeafblind/Visually impaired & Multiply Impaired. Articles, primarily on assistive living devices and education.

stained glass ballGothelf, C., Crimmins, D. B., Mercer, C. A & Finocchiaro, P. A. Teaching Students Who Are Deaf-Blind and Cognitively Disabled To Effectively Communicate Choices During Mealtime.

stained glass ballGrassick, S. (27 October 2001)Teaching Deafblind children.

stained glass ballIntroduction to sexuality education for individuals who are Deaf-Blind and significantly developmentally delayed. A free PDF version of over 100 pages of information and resources.

stained glass ballMar, H. Psychological evaluation of children who are deaf-blind: An overview with recommendations for practice.

stained glass ballMetcalf, C. (2005, January-March). Coping: Psychological and social issues of children with Type I Usher Syndrome. The Deaf-Blind American, 44, 1. pp. 38-44. This paper seeks to help the reader identify better with children who have Usher Syndrome by exploring the physical and psychological dimensions of the disorder.

stained glass ballMUMS National Parent-to-Parent Network.

stained glass ballNETAC. Teaching students who are Deaf-Blind.

stained glass ballPerkins School for the Blind is committed to providing education and services that build productive, meaningful lives for children and adults around the world who are blind, deafblind or visually impaired with or without other disabilities.

stained glass ballRelated Services Research Project to Support the Education of Students with Deaf-Blindness.

stained glass ballRochester Institute of Technology Library: Language and communication options in Deaf Education - Deaf Blind.

stained glass ballThe Ohio Center for Deafblind Education (OCDBE) provides services in Ohio for individuals, birth through 21 years, with deafblindness, including free collaborative technical assistance to families, educational personnel and service providers through training and information dissemination. The OCDBE offers innovative approaches to the education of children and youth with deafblindness.

stained glass ballThe Parent Advocacy Coalition for Educational Rights.

stained glass ballThe Rehabilitation Research and Training Center on Blindness and Low Vision. Deaf Blind links.

stained glass ballUS Code collection. Title 29: Chapter 21 - Helen Keller National Center for Youths and Adults who are Deaf-Blind.

stained glass ballWallber, M. J. & Clymer, E. W. (1996, November). Retention strategies for low vision students. A one page handout from the Proceedings of the Third Academic Convocation. (Requires Adobe Acrobat)

Ethics

stained glass ballAbout.com. Deafblindness.

stained glass ballAllAboutVision.com. Eye problems and diseases.

stained glass ballAtwood, A., Clarkson, J. and Laba, C. (1992). Deaf-blindness. Washington, D. C.: Gallaudet University.

stained glass ballDB-LINK. The National Information Clearinghouse On Children Who Are Deaf-Blind.

stained glass ballDeaf-Blind - Deafness/Hard of Hearing links: MiningCo.com.

books with pages turning General information in English (find those for other languages at International web sites)

stained glass ballDeafblindness bibliography.

stained glass ballDeafLinx. Deaf-Blind.

stained glass ballDeafBlindinfo.org showcases a vast collection of deafblindness information and resources in Minnesota and from around the world. Its Consumer Resource Guides aim to inform and empower adults, youth, families, and senior citizens with dual sensory impairment.

stained glass ballGallagher, G. Deafblindness bibliography.

stained glass ballHuebner, K. M. (April 1995) Hand in hand: Selected reprints and annotated bibliography on working with students who are Deaf-Blind. American Foundation for the Blind. ISBN: 0891289380.

stained glass ballInformation about Deafblindness. This is a British site, so some of it will be different than for the US, but it's just too good a site not to include here.

stained glass ballInformation Center [on blindness]: American Federation of the Blind.

stained glass ballInteractive fingerspelling & braille guide. This website is being reorganized, and this feature is in flux.

stained glass ballInternational bibliography of sign language. Click on appropriate initial letter, then on "deaf-blind" or "Usher's syndrom [should be 'Usher syndrome']".

stained glass ballLaura's room: Resources for the Deafblind.

stained glass ballLawhorn, Geraldine. (1991) An Autobiography by Geraldine Lawhorn. On Different Roads. Vantage Press, Inc. First Edition. ISBN #: 0533088240. A true story of courage in the face of adversity. Ms. Lawhorn was deaf and blind by the time she completed high school, but she did not allow this to embitter her.

stained glass ballLow vision/Blind & Deaf/Blind.

stained glass ballMactavish, J. (2001) BRAVO Miss Brown. Toronto, Ontario: Hushion House Publishing Ltd.

stained glass ballThe National Directory of Interpreters and Support Service Providers Who Work With Deaf-Blind Individuals (2nd edition 2000) is an essential resource for anyone needing interpreter services. The directory is arranged by state and provides contact information, data on certification, availability, and experience. Available free of charge from the National Interpreter Education Project, Northwestern Connecticut Community College, Park Place, Winsted, CT 06098; tel. V/TTY 860-738-6382; email: NW_MYERS@commnet.edu. Available in Braille, large print, and computer disk.

stained glass ballNorth Carolina Deaf-Blind Associates. Our mission is to advocate for the needs and rights of individuals who are Deaf-Blind and to enable individuals who are Deaf-Blind to achieve their maximum potential by being independent and productive in the mainstream as citizens of the state of North Carolina.

stained glass ballSense | Home.

stained glass ballSmith, R. and Steffen, C. (1996). Deaf-blind cultural issues. Gallaudet University. ms.

stained glass ballThe National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind.

owner with guide dogGuide dogs

stained glass ballCanine Companions for Independence.

stained glass ballFidelco Guide Dog Foundation.

stained glass ballGuide Dog Foundation for the Blind.

stained glass ballGuide Dogs for the Blind, Inc.

stained glass ballGuide Dog Users Inc.

stained glass ballGuiding Eyes for the Blind.

stained glass ballInternational Association of Assistance Dog Partners (IAADP).

stained glass ballLeader Guide Dogs for the Blind.

stained glass ballPaws with a Cause.

stained glass ballSoutheastern Guide Dogs.

History

stained glass ballBoggs-Qualls, R. & D. Greene. Walking free: The Nellie Zimmerman story. When Nellie lost her hearing her father learned how to talk with her by using the American Manual Alphabet. When she lost her sight and could no longer see his hand signs he learned how to spell his words in to her hands. But the rest of the family refused to learn how to talk with her in this way. After her father's death, Nellie was eventually committed to a state mental hospital. No one on the staff knew how to talk with her. Nellies lived in silence for 19 years. Upon her release, with the help of her companion Emily Street, who know this deaf alphabet, she was able to go to college, become a well-known lecturer, and worked as a life-skills instructor at a group home for deaf and deaf-blind boys.

stained glass ballBridgman, Laura and Julia Brace - About.com. Two largely-forgotten deafblind women from the 19th century.

stained glass ballCobb, L. (1834). The deaf, dumb, and blind girl. From Cobb's Juvenile Reader, Kickok and Shugert, in the San Francisco State University, Marguerite Archer Collection of Historic Children's Materials.

stained glass ballDeafBlind.org DeafBlind history.

Freeberg, E. (2001). Education of Laura Bridgman: First deaf and blind person to learn language. Visitors to London, England's Great Exhibition in 1851 were treated to America's contribution to nineteenth-century civilization. Dr. Samuel Gridley Howe, director of the Perkins Institution for the Blind in Boston, Massachusetts, presented the education of Laura Bridgman as a lesson in humanity. Howe proudly proclaimed Laura as one of the most famous people in the world. Her education was notable because she was not only blind, but deaf as well. She entered the school at age 7, and 14 years later at the Exhibition in London, was able to speak, read, and write with the help of a manual alphabet after a childhood with no sight or sound.

Gitter, E. (2001). Imprisoned guest: Samuel Howe and Laura Bridgman, the Original Deaf-Blind Girl. In 1837, Samuel Gridley Howe set out to save young Laura Bridgman from her dark and silent world. The deaf-blind 7-year-old was taught to fingerspell, read raised letters, and even write legibly. She had influential writers and reformers such as Darwin, Carlyle, and Dickens visit and write about her. But by the time she died in 1889, Bridgman was eclipsed in popularity by the prettier, more congenial Helen Keller. This absorbing account of the intersection of two extraordinary lives reintroduces Laura Bridgman to the attention of the 21st century reader.

Helen Keller kid's museum.

Herrmann, D. (1988). Helen Keller, A life. Most people associate Helen Keller with William Gibson's The Miracle Worker, but she faced many more challenges in her life until her death in 1968. This novel will take the reader through a life that would have crushed the spririt of a woman less stoic and adaptable, speaking on the world she encountered daily and how she dealt with it. It also touches upon the controversy involving Keller's teacher, Annie Sullivan, whom critics believe was not a miracle worker but a woman who used Keller as a way to gain fame and fortune. Read this book to gain an in-depth look at the real Helen Keller, a beautiful, high-strung and enigmatic individual who might have grown up as a spoiled and willful Southern woman if not for her disabilities.

stained glass ballKeller, Helen: American Federation of the Blind. Hundreds of documents and pictures.

stained glass ballKeller, Helen: RNIB.

stained glass ballKeller, Helen: a "starter course".

stained glass ballwww.disabilityfilms.co.uk.

golden marble bulletHelen Keller and her teacher. Film (1970) USA, biography. Director: Noah Keen. Cast: Peri Weinstein, Barboura Morris, and Noah Keen.

golden marble bulletHelen Keller in her story. Film (1955) USA, documentary. Helen Keller's life from birth to the seventies. Some newsreel footage of Ann Sullivan her early teacher and companion. This won the Academy Award for best feature documentary 1956.

golden marble bulletHelen Keller: The miracle continues. Made-for-TV film (1984) USA, biography. Winningham plays Helen Keller in a later period of her life.

golden marble bulletThe miracle worker. B/W film (1962) USA, 107 min, drama. Director: Arthur Penn, cast: Anne Bancroft, Patty Duke, Victor Jory, Inga Swenson, Andrew Prine, Beah Richards. The Helen Keller story (she is a blind, deaf and speaking impaired). Perhaps the film which everybody has heard of about Helen Keller.

golden marble bulletThe miracle worker. Made-for-TV film (1979) USA, 100 min, drama. The only reason I can think for making this film is that the original is in black and white. Patty Duke now plays the Ann Bancroft role.

golden marble bulletMonday after the miracle. TV film (1998) USA, biography. This film expands the Helen Keller story beyond the early years. She's studying at Radcliffe College and she's writing a series of articles and a book. Useful addition to The Miracle Worker (1962).

golden marble bulletThe unconquered (Helen Keller in her story.) Film (1954) USA, documentary. Helen Keller's story told through newsreels and reconstructions. Dorothy Herrmann's book "Helen Keller: A Life" is said to be a good, complex, account which shows Keller as a whole person and not a "plaster saint."

folded newspapers Journals, newspapers and newsletters in English (find those in other languages at web sites)

stained glass ballBEACON: Australian DeafBlind Council Newsletter.

stained glass ballCalifornia Deaf-Blind Services Newsletter.

stained glass ballDBInews is DeafBlindInfo.org's free monthly e-newsletter. Features include DeafBlind columnists and commentaries as well as information on updates and new features for visitors to the site. It is hosted by Yahoo! Groups.

stained glass ballDbI Review.

stained glass ballDeafblind American, edited by Harry Anderson. E-mail: hca@AUG.COM , published by the American Association of the Deaf-Blind, 814 Thayer Avenue Suite 300, Silver Spring, MD 20910-4500. Phone: 301 588-6545 fax: 301 588-8705.

stained glass ballDeafblind.co.uk. Lists of magazines, Journals and Periodicals related to Deafblindness.

stained glass ballDeafblind Education, published by the International Association for the Education of Deafblind people (IAEDB), c/o Sense, 11-13 Clifton Terrace, Finsbury Park, London, ENGLAND N4 3SR. E-mail: enquiries@sense.org.uk Available to members, of which there are 2 types: Individual membership is open to anyone, and is free. An annual donation of £10 or $US 20 is requested. Corporate Membership is open to any school, association, society, institution or similar organization. There is an annual subscription of £100 or $US200. Available in English or Spanish.

stained glass ballDeaf-Blind Perspectives is published three times yearly by the Teaching Research Division of Western Oregon State College. Mail: Deaf-Blind Perspectives, Teaching Research Division, 345 N. Monmouth Ave., Monmouth, OR. Phone: Randy Klumph, (503) 838-8885 (V), 503 838-8821 (TTY). Fax: 503 838-8150. E-mail: klumphr@fstr.wou.edu. Indicate media preference: Standard print; Large print; Grade 2 Braille; ASCII; WordPerfect 5.1.

stained glass ballDeafblind Techies Newsletter. The first link is broken, but don't give up.

Stained glass bullethovpod. (8 September 2006). Hovercraft driven by Deaf and Blind man across the Solent!UK flag(video camera: This links to a video) Hovercraft charity stunt, Graham Hicks is a deaf and blind stuntman who just through touch control, is up for any challenge. He is simply amazing, and refuses to let his handicap stop him having fun! See him drive the Hov Pod Hovercraft with two passengers across the Solent and back, saves taking the ferry !

stained glass ballIn Touch is the newsletter of the Center for Disabilities Deaf-Blind Program. It is produced by the staff of the Deaf-Blind Program [South Dakota] and is published three times each year.

stained glass ballLargePrintReviews.com. Articles on eye health, eye diseases and disorders, accessibility issues, literature, products for the blind and visually impaired, plus travel articles and travel tips.

stained glass ballO'Brien, S. and Steffen, C. (1996). Tactile ASL: ASL as used by Deaf-Blind persons. In L. Byers and M. Rose Communication Forum: Vol. 5. (pp. 145-158). Washington, D. C., Gallaudet Publications.

stained glass ballRP Messenger. Published by TARP about Retinitis Pigmentosa. It also includes a certain amount of information about Usher Syndrome. Managing editor: Dorothy Stiefel dstiefel@mail.interconnect.net. For further information contact: Texas Association of Retinitis Pigmentosa, Inc. (TARP), P.O. Box 8388, Corpus Christi, Texas 78468-8388. Voice/TDD/fax: 512 852 8515.

stained glass ballSEE HEAR. A Quarterly Newsletter For Families And Professionals On Visual Impairments And Deafblindness. A collaborative effort of the Texas School for the Blind and Visually Impaired and Department of Assistive and Rehabilitative Services, Division for Blind Services

stained glass ballTalking Sense is published quarterly by Sense. The annual subscription is £10. For further information contact: 11-13 Clifton Terrace, Finsbury Park, London, ENGLAND N4 3SR. E-mail: enquiries@sense.org.uk.

stained glass ballThe Tactile Mind Weekly. Week after week, The Tactile Mind Weekly dishes out signing community wit and wisdom. John Lee Clark, Trudy Suggs, Christopher Jon Heuer, Sara Stallard, Adrean Clark, and Raymond Luczak maintain weekly columns alongside regular appearances by guest writers. This free publication also keeps readers abreast of new The Tactile Mind Press titles. Surrogate formats of our products can be made available for large print and Braille readers. To get items in the format desired, simply order the items and then e-mail us details about your preferences. For large print requests, please specify the font and size of choice.

stained glass ballUsher Around the World. Editor in Chief: Maggie King mking@interaccess.com. Mail: Usher Around the World, c/o Kathie Anderson, P.O. Box 17318, Minneapolis, MN. 55417 USA. Cost per year is $16.00 in USA, $19.00 in Canada & Mexico and $22.00 all other. Indicate if you are US 1, US 2, US 3, family member, or professional. Please specify preferred format: large print, Braille or audio.

movie of letter being mailedMailing lists/ chat sites in English (find those in other languages at web sites)

Mailing list are group discussion by e-mail, where all submissions and responses of a group are sent to a central location and then back to all members so that everyone's comments on a focus topic (sometimes it loses its focus, sigh) can be read.

stained glass ballAADB Listserv - A new listserv for AADB members for the purpose of exchanging ideas and information about AADB and the national deaf-blind community. Randall Pope is the moderator for this new listserv. Members who wish to subscribe should send an email to aadb-L-subscribe-request@wou.edu.

stained glass ballAER-Rehab@topica.com is an online discussion forum designed for consumers as well as professionals about rehabilitation-related approaches and techniques, research, administrative challenges, public policy, and current crtiical issues hosted by the Association for Education and Rehabilitation of the Blind and Visually Impaired. Send a blank e-mail to: AER-Rehab-subscribe@topica.com

stained glass ballCHARGE-L. Send e-mail to: majordomo@avenza.com

Subject: (leave blank)

Body of message: SUBSCRIBE CHARGE-L <your email address>.

stained glass ballClosing the Gap Forums is a discussion board exploring the many ways that technology is being used to enhance the lives of people with special needs.

stained glass ballDBED-L, Deaf-Blind Education (Public).

stained glass ballDbI-Interpreters-Development-Network. The Interpreter Network hopes to bring interpreters for the deafblind and deafblind people themselves from various countries closer together to share information and materials. Deafblind people are very welcome because they can also share information and materials. We are aware that not all countries are equally advanced. For example, there is an issue about developing a system of paid interpreters and how to get this up and running. So we want to share ideas and answer questions together.

stained glass balldbintervenors is a chat group for intervenors, SSPs and their supporters. To subscribe, send a blank e-mail to: dbintervenors-subscribe@yahoogroups.ca.

stained glass balldbspirit. By sharing Bible verses, prayer requests, songs, praises, testimony, and plain sharing and fellowship with one another with the common bond of being Deaf Blind, Christian, and often have contacts with other believers. We welcome anyone who will share and edify one another through Scriptures and JOY of fellowship in HIM!

stained glass ballDB-Spousal Support group for spouses and partners of persons who are deaf-blind (DB) or hearing-and-visually-impaired (HAVI). Subscribe to this group by sending a blank e-mail request to: DB-Spousal-Support-subscribe@yahoogroups.com

stained glass ballDBTEENS, Private Discussion List for Deaf-Blind Teenagers and Young Adults. Its purpose is to share information, inquiries, ideas and opinions about deaf-blindness and other issues and to share the daily events in our lives. This is a private list for teenagers and young adults.

stained glass ballDBWOMENCHAT or alternate site. This list aims to support women who live with the daily challenges of Deafness and Blindness. Issues discussed may include fashion, relationships, and communication needs. This list is for all Deafblind women to support each other in any way you see fit.

stained glass ballDEAFANDBLIND. Disabled club for the blind and deaf.

stained glass ballDEAFBLINDESS. For people who are deafblind or are friends or family to a deaf blind person. It is really for anyone that is interested in learning about this topic.

stained glass ballDeafBlindLGBT. This group is for people who are Deaf-Blind and Lesbian, Gay, Bisexual, or Transgender.

stained glass ballDeafBlind_Terps. The aim of this international group is to share experiences and ideas about interpretation for deafblind people as well as any other communication related topics. Everyone can participate in the discussion: hearing or deaf interpreters, deafblind people, deaf people, professionals, or any people who are just interested in the subject.

stained glass ballDEAFBLND. The purpose of this list is to share information, inquiries, ideas and opinions on matters pertaining to Deaf-Blindness. This list is open to professionals, persons who are deaf-blind, and to their families and friends. This includes the archives.

stained glass ballLista de distribución de correo sobre Sordoceguera (Castellano). El tópico de la lista es la Sordoceguera. Para subscribirse a la lista enviar un mensaje a: LISTSERV@LISTSERV.REDIRIS.ES y en el cuerpo del mensaje escribir: "subscribe SORDOCEGUERA nombre y apellidos" (sin comillas). Si necesita más información sobre la lista SORDOCEGUERA o asistencia, contacte con Ricard López.

stained glass ballL-Soft. Click on "Search for a mailing list of interest" and search "deaf blind".

stained glass ballMailing lists and newsletters for Deafblind people. The Officers of Deaf-Blind Officers listserv is a networking place for the officers of DB organizations where they can share anything pertaining to ADA, legislation, issues, conferences, meeting management, transportation and interpreter strategies, and fundraising ideas. If you are an officer of a deaf-blind organization and would like to join us, please contact us: Jill Gaus - jgaus@absolute-net.com, Lynn Jansen - LynnSmilin@aol.com, Randall Pope - rpope5@carolina.rr.com.

stained glass ballRPLIST. Send e-mail to: listserv@maelstrom.stjohns.edu

Subject: (leave blank)

Body of message: subscribe rplist (your first and last name).

stained glass ballUsher-Friends. This list is for people with Usher Syndrome (an incurable genetic disorder that robs both hearing and sight) who like to sit down with their favorite drink and chat about anything that comes to mind.

stained glass ballUSHER-LIST. Send e-mail to: majordomo@farside.cc.misu.nodak.edu

Subject: (leave blank)

Body of message: SUBSRIBE USHER-LIST <your email address>.

stained glass ballUSHERS, Ushers Syndrome Mailing List (Public).

organizational [American] Organizations (find those for other countries at web sites)

stained glass ballAADB - American Association of the Deaf Blind is a national consumer organization of, by, and for people with both vision and hearing losses. Members have all types and degrees of combined vision and hearing losses. We also welcome others as members who have an interest in the works of AADB and the deaf-blind community.

stained glass ballADBC - Arkansas DeafBlind Community is the ONLY consumer directed organization in Arkansas that represents the interests of the deafblind population. In addition, we help one another by sharing ideas and resources aiding in making the deafblind community statewide a perfect place for us. To that end our organizational goals include providing a social network for sharing information, offering workshops on employment, independent living, leadership skills, and computer technology, and sponsoring Deafblind Arkansans to attend a biennial convention of the American Association of the DeafBlind.

stained glass ballAFB - American Foundation for the Blind is a national nonprofit that expands possibilities for people with vision loss. AFB's priorities include broadening access to technology; elevating the quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing them and their families with relevant and timely resources. AFB's work in these areas is supported by the strong presence the organization maintains in Washington, DC, ensuring the rights and interests of people with vision loss are represented in our nation's public policies.

stained glass ballAlabama Institute for Deaf and Blind. The world's most comprehensive education, rehabilitation and employment system serving children and adults who are deaf, blind and multidisabled. With five campuses and nine regional centers throughout the state, AIDB has been investing in the lives of thousands of infants, toddlers, children, adults and seniors who are challenged by hearing and vision loss for 150 years.

stained glass ballDeaf-Blind Service Center. The Deaf-Blind Service Center believes communication is the core issue in providing quality services to Deaf-Blind people. Within DBSC, high quality communication with Deaf-Blind people is insured in these ways: 1) All information is provided in the desired communication mode of the person being served, whether that is braille, close vision or tactile communication; 2) Our staff possesses a complementary set of language and communication skills, to meet the broadest possible spectrum of language and communication needs; 3) We obtain qualified interpreters for larger meetings or when the communication needs of the Deaf-Blind person cannot be met within DBSC's in-house resources; 4) We conduct all advocacy and case planning with the fullest possible participation of the Deaf-Blind individual.

stained glass ballHelen Keller National Center For Deaf-Blind Youths & Adults. Our mission is to enable each person who is deaf-blind to live and work in his or her community of choice. Authorized by an Act of Congress in 1967, the Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) is a national rehabilitation program serving youth and adults who are deaf-blind. The Center provides services to youth and adults who are deaf-blind according to the definition of deaf-blindness in the Helen Keller Act.

stained glass ballHelen Keller Services for the Blind. Our mission is to help individuals of all ages who are blind or visually impaired, and who may have additional disabilities, to develop independence and to participate actively in their communities. Basic rehabilitation services, such as training in safe travel and daily living skills, are provided to approximately 2,000 clients in the New York metropolitan area each year. In addition, we annually screen close to 25,000 youngsters for eye disorders that will lead to permanent visual impairment if not detected and treated early in a child's life.

stained glass ballMinnesota DeafBlind Association. As the only organization serving DeafBlind people in Minnesota that is governed by DeafBlind people, MDBA is a focal point of the Minnesota DeafBlind community. MDBA’s DeafBlind leadership meetings, community workshops and special events allow DeafBlind people to thrive and flourish in a kinship of support and solidarity. Established in 1979, MDBA is committed to providing information, education, advocacy and other services to persons who are DeafBlind, family members, parents of deafblind children, allies and professionals.

stained glass ballMontana IDEA Deaf-Blind Services. The fundamental goal... is to empower Montana's individuals with deaf-blindness, by providing them, their families and service providers an array of technical assistance and training opportunities specifically designed to meet the individual and unique needs of children and young adults 0-21 that are identified as having deaf-blindness. The services provided by the Deaf-Blind Project are available in all settings and environments dictated by the precise and unique needs of each individual with deaf-blindness.

stained glass ballNorthern California Association of Deaf-Blind (NCADB) is a nonprofit 501 (c)(3) tax-exempt organization ‘of, by, and for’ the Deaf-Blind community. Our mission is to help Deaf-Blind persons to achieve their maximum potential through increased independence, productivity, and integration into the community. NCADB is a member of American Association of the Deaf-Blind (AADB). Please enjoy surfing with our website and give us any comment and input to improve the website.

stained glass ballProject Reach: Illinois Deaf-Blind Services.

stained glass ballRID's Special Interest Groups (SIGS). Scroll down to "Interpreters for the Deaf-Blind".

stained glass ballSeattle Lighthouse for the Blind.

stained glass ballSix Friends: Organizations of and for the Deafblind.

stained glass ballThe CHARGE Syndrome Foundation. Our mission is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.

stained glass ballThe Deaf-Blind Explorers. A non-profit organization dedicated to provide soluations for traveling needs of the deaf-blind.

stained glass ballThe Metro Washington Association of the Deaf-Blind's purpose is to encourage, recognize and promote the needs of Deaf-Blind people in the metropolitan Washington area in the pursuit of economic security, social equality, access to community resources and privileges as citizens via community, leadership, communication and mobility and technology.

stained glass ballThe National Family Association for Deaf-Blind (NFADB) is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. NFADB is the largest national network of families focusing on issues surrounding deaf blindness.

stained glass ballThe National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind strives to improve the quality of early intervention, education and transition services to children and young adults who are deaf-blind. This is accomplished by providing technical assistance on effective practice and promoting collaborative partnerships for meeting the unique and diverse needs of children and young adults who are deaf-blind and their families.

stained glass ballThe Ohio Center for Deafblind Education (OCDBE) provides services in Ohio for individuals, birth through 21 years, with deafblindness, including free collaborative technical assistance to families, educational personnel and service providers through training and information dissemination. The OCDBE offers innovative approaches to the education of children and youth with deafblindness.

stained glass ballThe Parent Advocacy Coalition for Educational Rights (PACER) Center. Our mission is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.

stained glass ballThe Perkins School for the Blind provides its students with the tools and knowledge to chart a course toward each individual's maximum level of independence, rich in experience and overflowing with potential.

stained glass ballUSA organizations for Deafblind people.

stained glass ballWashington State Deaf-Blind Citizens, Inc. Mission Statement: To establish with specific interest of encouraging and promoting educational, economic, and social welfare; to encourage fellowship; to defend our rights, and advance an organization in which members can participate in the discussion of problems and solutions relative to their welfare and prosperity.

golden statue of man with mobility cane Orientation and mobility

stained glass ballBlasch B. B. (Ed.), W. R. Wiener (Ed.), and R. L. Welsh. (November 1997). Foundations of orientation and mobility. American Foundation for the Blind; ISBN: 0891289461.

stained glass ballBrennan, M. (Ed.) (December 1983). Show me how: A manual for parents of preschool visually impaired and blind children. American Foundation for the Blind; ISBN: 0891281134.

stained glass ballDodds, A. Rehabilitating blind and visually impaired people. ASIN: 156593153X.

stained glass ballDodson-Burk, B. and E. W. Hill. (May 1989). An orientation and mobility primer for families and young children. American Foundation for the Blind; ISBN: 0891281576.

stained glass ballFoy, C. J. (September 1991). English-Spanish basics for orientation and mobility instructors. American Foundation for the Blind; ISBN: 0891281924.

stained glass ballGoodman, W. (April 1989). Mobility training for people with disabilities: Children and adults with physical, mental, visual, and hearing impairments can learn to travel. Charles C. Thomas Pub Ltd; ISBN: 0398055726.

stained glass ballHeubner, K. M. (Ed.), E. Joffee (Ed.), J. G. Prickett (Ed.), T. Rafalowski Welch (Ed.) (March 1995). Hand in hand: Essentials of communication and orientation and mobility for your students who are Deaf-Blind. American Foundation for the Blind; ISBN: 0891289372.

stained glass ballHill, E. W. and P. Ponder. (June 1976). Orientation and mobility techniques: A guide for the practitioner. American Foundation for the Blind; ISBN: 0891280014.

stained glass ballJacobson, W. H. (November 1993). The art and science of teaching orientation and mobility to persons with visual impairments. American Foundation for the Blind; ISBN: 0891282459.

stained glass ballPogrund, R. L. (August 1993). Teaching age-appropriate purposeful skills: An orientation and mobility curriculum for students with visual impairments. Texas School for the Blind; ISBN: 188036610X.

Usher Syndrome and other causes of Deaf-Blindness

stained glass ballBoys Town National Research Hospital: What is Usher Syndrome?

stained glass ballCHARGE Synrome.

stained glass ballFamily Village. Usher Syndrome.

stained glass ballFamily Village. Liz and Adam Stone - Usher Syndrome. Liz Stone was diagnosed with profound deafness before her first birthday. Devastated by the news, her parents Evan and Jill, learned everything they could about raising a deaf child. Six years later, their second child Adam was born. Sadly, they learned that he too was deaf. With the help of special teachers, programs and schools, Adam and Liz learned to live with their hearing loss and developed into excellent, well-adjusted students

stained glass ballMinnow's Place: CHARGE Syndrome.

stained glass ballNational Center for the Study and Treament of Usher Syndrome.

stained glass ballNIDCD health information: Usher Syndrome. Webmaster: Very clear and concise.

stained glass ballRP links.

stained glass ballRP: Through a Tunnel Darkly. Soundprints radio show on RP (downloadable).

stained glass ballTARP. Usher Syndrome page.

stained glass ballVision Simulation Video - American Foundation for the Blind. See for yourself what the most common age-related eye conditions look like. Note: This video may take several seconds to load. Thanks for your patience!

stained glass ballWenberg, J. Retinitis Pigmentosa page.

image Videotapes in English (find those for other countries at web sites)

stained glass ballAssume nothing: An introduction to Deafblindness. West Australian Deafblind Assoc (WADBA) has released its deafblind awareness and training video. Six clients of WADBA are highlighted, from the very young to adults, all with varying degrees of hearing and vision loss. The focus is on what people who are deafblind CAN do, given appropriate supports and services. Issues presented include communication, early intervention, education, technology, career choice, recreation, independence and interpreting.

stained glass ballMassoud, L. Interpreting in various settings [Videotape in 3 volumes]. Harris Communications. Settings discussed: oral, educational (K-12 and post-secondary), employment/rehabilitation, performing arts Interpreting, medical Interpreting, telephone, round table, Deaf-Blind, interpreting for mis-educated Deaf persons, legal, artistic (music), ASL to English, religious, platform, and health/counseling.

stained glass ballSacks, O. (1998). The Ragin' Cajun: Usher Syndrome [Videotape]. Princeton, NJ: Films for the humanities and sciences.

stained glass ballSmith, T. Deaf-Blind communication and community.


revolving globe International web sites

Note: A flag next to a link shows what language the website is in. If it is followed by this icon: (video camera: This links to a video), it is a video in that spoken language. If it is followed by this icon: Sign Language icon, it is in the sign language of that country. If a globe is followed by this hands icon, there is an animated text in International Gesture.

stained glass ballTHE WORLD


stained glass ballAFRICA

stained glass ballASIA

stained glass ballEUROPE

stained glass ballLATIN AMERICA

stained glass ballPACIFIC BASIN

stained glass ballSCANDANAVIA


Select a country from the table below or scroll down.

American Samoa Argentina Australia Barbados Belgium Bolivia Brazil
Bulgaria Canada Chile China Colombia Croatia Czech Republic
Denmark England Finland France Germany Greece Guam
Guatemala Hong Kong Iceland India Ireland Israel Italy
Jamaica Japan Kazakhstan Kenya Marshall Islands Mexico Micronesia
Morocco Netherlands New Zealand Northern Marianas Norway Palau Peru
Poland Puerto Rico Russian Federation Romania Scotland Singapore Slovakia
South Africa South Korea Spain Sweden Switzerland Tanzania Uganda
United Arab Emirates United Kingdom Uruguay Venezuela

THE WORLD

stained glass ballA-Z to Deafblindness.

stained glass ballBoletín Internacional de prensa para Personas Sordociegas. (Mayo 2001).

stained glass ballConferences, courses, events, seminars, and workshops throughout the world about Deafblindness.

stained glass ballDeafblind International.

stained glass ballInternationaal site's Doofblinden.

stained glass ballMishra, S. & Simms, B. Including Deafblind Children. For deafblind children and their families, the Salamanca Statement was a breakthrough. It was the first major international declaration to make reference to the specific needs of deafblind children.(1) However, in the experience of Sense International and its partners, Salamanca has had little or no positive effect on the numbers of deafblind children(2) accessing formal educational opportunities, and there is little understanding of how a deafblind child can be supported within either mainstream or specialist settings.(3) This article highlights the problems facing deafblind children with examples of individual children with whom Sense International is working in India. It raises questions about our understanding of the term 'inclusion' and how this is being interpreted 'on the ground' by national governments and child rights activists.

stained glass ballOrganizations for Deafblind people throughout the world.

stained glass ballRetina International.

stained glass ballSense International.

stained glass ballThe World Blind Union (WBU) is the international voice of 180-million blind and visually impaired people. With member organizations in virtually every country in the world, WBU works to promote equal opportunities for blind and visually impaired people; to raise the status of blind women, DeafBlind persons, blind people with multiple disabilities; and to further international cooperation between organizations working for the welfare of people who are blind and the prevention of blindness throughout the world.

stained glass ballWorld Federation of the Deafblind.

stained glass ballWFDB - Federación Mundial de Sordociegos.


AFRICA

stained glass ballAfrican organizations for Deafblind people.

stained glass ballKamau, K. (n.d.). Community based rehabilitation of Deafblind people in East Africa.

stained glass ballPerkins - Expanding Educational Opportunities in Africa.

stained glass ballSense International - East Africa.

ASIA

stained glass ballAhmedabad.com. Bringing the light of Asia. The Deaf-Blind International Conference that recently concluded at the Blind People’ s Association, Vastrapur, was an opportunity for people from all over Asia to learn about advancements In visual impairment. The committee members passed resolutions after an open discussion to ascertain targets for future development and planning of services which would help empower such people to take their rightful place In the society.

EUROPE

stained glass ballEBU Commission on Activities of Deafblind People.

stained glass ballEuropean Deafblind Union.

stained glass ballEuropean organizations for Deafblind people.

stained glass ballEuropean Usher website.national flags, national flags,national flags

stained glass ballHawcroft, L.

golden marble bulletA comparative study of roles, training of, and rights to interpreters for Deafblind people.

golden marble bulletEuropean Deafblind comparative study - Interim report.

stained glass ballService providers for Deafblind people in Europe.

stained glass ballThe social inclusion for Deafblind people in the European Union.

LATIN AMERICA

stained glass ballBoletín Internacional de prensa para Personas Sordociegas. (Mayo 2001). Informe de America Latina.

stained glass ballPOSCAL - Programa para la Creación de Asociaciones de Sordociegos en América Latina.

stained glass ballSense Internacional - Latinoamérica.Spanish flag,USA/UK flag

stained glass ballSense International - Latin America.

PACIFIC BASIN

stained glass ballPacific Basin Deaf-Blind Project. State & Multi State Projects for Children with Deaf-Blindness. Final Report, 1992-1995. This final report describes activities and accomplishments of the Pacific Basin Deaf-Blind Project, a 3-year federally funded project to provide technical assistance to public and private agencies, institutions, and organizations providing early intervention, educational, transitional, vocational, early identification, and related services to children and youth with deaf-blindness in American Samoa, the Commonwealth of the Northern Mariana Islands, the Federated States of Micronesia, Guam, the Republic of Palau, and the Republic of the Marshall Islands.

SCANDANAVIA

stained glass ballThe Nordic Culture Network.

stained glass ball(1999). Text telephony for the deaf, the hearing impaired the deaf-blind and the speech impaired people.


American Samoa

stained glass ballPacific Basin Deaf-Blind Project. State & Multi State Projects for Children with Deaf-Blindness. Final Report, 1992-1995. This final report describes activities and accomplishments of the Pacific Basin Deaf-Blind Project, a 3-year federally funded project to provide technical assistance to public and private agencies, institutions, and organizations providing early intervention, educational, transitional, vocational, early identification, and related services to children and youth with deaf-blindness in American Samoa, the Commonwealth of the Northern Mariana Islands, the Federated States of Micronesia, Guam, the Republic of Palau, and the Republic of the Marshall Islands.

Argentina (Argentina)

stained glass ballAPASHA - Asociación de Padres y Amigos de Sordos-Hipoacúsicos de Argentina.

stained glass ballAsociación de Padres de Personas con Sordoceguera de la República Argentina.

reddesordoceguera · EDUCATION INTERATIONS.

stained glass ballUnion Argentina de Sordomudos.

Australia (Australia)

stained glass ballAble Australia Services is the name of the organisation that now provides a range of services for people with a range of multiple disabilities including deafblindness.

stained glass ballAssume nothing: An introduction to Deafblindness. West Australian Deafblind Assoc (WADBA) has released its deafblind awareness and training video. Six clients of WADBA are highlighted, from the very young to adults, all with varying degrees of hearing and vision loss. The focus is on what people who are deafblind CAN do, given appropriate supports and services. Issues presented include communication, early intervention, education, technology, career choice, recreation, independence and interpreting.

stained glass ballAustralian Communication Exchange.

stained glass ballAustralian Deaf Blind Council or alternate site.

stained glass ballAustralian Deafblind manual alphabet.

stained glass ballBEACON: Australian DeafBlind Council Newsletter. Archives.

stained glass ballCarronbank School for Deaf-Blind Children. Contact info only.

stained glass ballDeafblind Association of South Australia. Contact info only.

stained glass ballThe Deaf-Blind Association, Victoria.

stained glass ballDeafblind Association of South Australia Inc.

stained glass ballDeafblind interpreting guidelines.

stained glass ballForsight Foundation for the Deaf/Blind. Contact info only.

stained glass ballGrassick, S. B. (June 1998) Interpreting for people who are Deafblind: Guidelines.

stained glass ballLeed, W. A.

golden marble bullet(25 February 1997). GRASP - Recognising Auslan signs using instrumented gloves.
golden marble bullet(15 June 1999). Machine gesture and Sign Language recognition.

stained glass ballLewis, K. (1998) Etiologies of Deafblindness and implications for communication.

stained glass ballNoticias Alejandría (2004). Primer diario digital para sordos y ciegos creado por niños argentinos.

stained glass ballNSW DeafBlind Association - DBA (NSW) Inc. Contact info only.

stained glass ballPrain, M. (n.d.) Assisting adults with acquired deafblindness to keep in touch.

stained glass ballQueensland Deafblind Association. Contact info only.

stained glass ballRenwick College. Contact info only.

stained glass ballRoyal Institute for Deaf and Blind Children.

stained glass ballService providers for Deafblind people in Australia.

stained glass ballWestern Australia Deaf-Blind Association. Contact info only.

Barbados (Barbados)

stained glass ballBarbados Association for the Deaf and Blind. Contact info only.

Belgium (Belgique - België)

De VZW InfoVisie.Dutch flagSinds de jaargang 2003 is de elektronische HTML versie van het tijdschrift "Infovisie Magazine" gratis verkrijgbaar. Als u van de deze mogelijkheid gebruik wil maken, stuur dan een email met uw volledige adresgegevens naar Jan Engelen. Elk nieuw nummer wordt u, direct bij het verschijnen ervan, per email toegestuurd. Vanaf 2007 is Infovisie Magazine, tegen betaling, beschikbaar in zwartdruk en in DAISY formaat. De elektronische HTML versie blijft gratis.UK flagThe Infovisie Technical Advice Centre started in 1985 out of a collaboration pact between the Departments of Electrotechnics and Ophthalmology of the Katholieke Universiteit Leuven, together with the "Organisation for visually impaired workers" and several Belgian institutions and schools for visually handicapped persons. Its main goal was and is to collect and to spread information (to both the users and specialists in the field) about the sophisticated technological aids that are being developed for visually handicapped and deaf blind persons.

stained glass ballHildaholics.Dutch flag

stained glass ballHildaholics Channel.Dutch flagSign Language icon

Les Cedres. L'ASBL "Les Cèdres" propose: Un accompagnement pédagogique personnalisé et adapté à la nature du handicap aux étudiants de l'enseignement universitaire et supérieur sourds ou malentendants aveugles ou malvoyants. Une sensibilisation au handicap aux familles d'étudiants déficients sensoriels aux acteurs de la vie académique Un dépistage de la surdité.

Bolivia (Bolivia)

Shettle, A. (2004, Spring). Deaf Children with Additional Disabilities in Developing Countries, Bolivia.

Brazil (Brasil)

stained glass ballADefAV. Contact info only.

FENEIS - Surda Cega. Noite tempestuosa e escura! No céu não luzia uma estrela. - Era uma vez, começou a contar o pai à sua filha, bem no início do livro..., Apaga-se a luz, e o pai desconcertado, tateia no escuro e procura o livro que caiu no chão... A filha lhe diz para continuar contando a estória, ela quer saber como se construiu o castelo da princesa Gennet. O pai lhe falou tanto durante o dia, enquanto havia luz...

stained glass ballSurdos no Brasil.

Bulgaria (indigenous name for Bulgaria)

stained glass ball8th European Holidays for Deafblind People.

stained glass ballTaizé. (2004, October). The seeing and talking hands club. Hands that speak: the sign language of the deaf. Hands that talk: the Braille of the blind. Its aim is quite simple: to enable deaf and blind people in Alagoinhas to live fully, to support their families, defend their rights, and to reinforce ties between the deaf and those who hear, and between the blind and those who see.

stained glass ballНАЦИОНАЛНА АСОЦИАЦИЯ НА СЛЯПО-ГЛУХИТЕ В БЪЛГАРИЯ.

Canada (Canada)

stained glass ballBritish Columbia Association of the Deaf-Blind. Mission statement: (1) Educate and inform the public, governments, media, educators, social service and health agencies about deafblindness. (2) Train and provide intervenors and interpreters to persons who are deafblind. (3) Promote the participation of persons who are deafblind in the community as a whole. (3) Organize Deaf-Blind Awareness Week each year. (4) Promote public involvement in the work of the BC Association of the Deaf-Blind. (5) Provide persons in British Columbia who are deafblind with social, recreational, and community activities.

stained glass ballBritish Columbia Ministry of Education - Special Education Services: A manual of policies, procedures and guidelines. Includes Deafblind.

stained glass ballCanadian Council of the Blind / Le Conseil Canadien des Aveugles.American & British flag,French flag 1. Peer support - assisting other persons who share the same disability and encouraging their independence. 2. Advocacy - participating in activities designed to improve availability and /or accessibility of services of all kinds. 3. Public Awareness - activities designed to increase the general understanding of the challenges faced by the stakeholders and their successes in responding to them. 4. Learning - developing opportunities for stakeholders to gain the confidence, knowledge and skills that give greater access to learning opportunities. 5. Empowerment - through the sense of association increase the capacity to work for the stakeholder's 'public good'.

stained glass ballCanadian Helen Keller Centre is the first skills training centre in Canada where individuals who are Deaf-Blind can upgrade or gain independent living and technical skills.

stained glass ballCharge Syndrome Canada. In February 2003, we became our own official non-profit corporation and since that time have been working hard across Canada. Our first national CHARGE Syndrome workshop in Toronto, October 2004, was a great success. In fall 2004 we moved head office from New Brunswick, into the province of Alberta. In 2005 we became a registered charity.

stained glass ballCNIB / INCA.American & British flag,French flag The CNIB is a nationwide, community-based, registered charity committed to research, public education and vision health for all Canadians. CNIB provides the services and support necessary for people to enjoy a good quality of life while living with vision loss.

stained glass ballCTV (Canadian Television) story on Megan McHugh, a Deab-Blind hockey player.video camera: This links to a video Requires QuickTime.

stained glass ballDeafblind Association of Toronto. Contact info only.

stained glass ballDeafTODAY. (2004, June 10). Intervening on group's behalf. Deaf-blindness poses a challenge.

stained glass ballDRB Housing Society. Contact info only.

stained glass ballEdmonton Deaf Blind Society. Contact info only.

stained glass ballEyesight.ca. Concise non-technical definitions of various eye conditions, their causes, treatments and research.

stained glass ballFoundation Fighting Blindness - Canada. Our mission is to promote and support research directed to finding the cause, developing a treatment and ultimately a cure, for RP and related retinal degenerations, including macular degeneration and Usher syndrome.

stained glass ballGroup Home for Deafblind Persons (Brantford) Inc. Contact info only.

stained glass ballInstitut de readaptation en deficience physique de Quebec.

stained glass ballInstitut Raymond-Dewar Programme de la surdicécité. Les services du Programme Surdicécité s'adressent aux personnes de tous âges présentant la double déficience auditive et visuelle. Ces services sont accessibles pour les personnes sourdes-aveugles de tout l'ouest du Québec. Des services sont également disponibles pour les personnes sourdes-aveugles atteintes du syndrome d'Usher.

stained glass ballIntervention Manitoba Inc. is an Outreach Program of the Canadian Deafblind and Rubella Association. Intervention Manitoba Inc. provides people who are deafblind with the assistance they need to understand the world around them. Intervenors are trained to be the eyes and ears of individuals who are deafblind, helping them to understand the world and realize their full potential. With intervention, a person who is deafblind can pursue many of the same goals as others - education, work, recreation, friends and family.

stained glass ballManitoba Deaf-Blind Association Inc. is a community-based advocacy group interested in improving opportunities and resources for Deaf-Blind Manitobans. The Resource Centre for Manitobans who are Deaf-Blind (RCMDB) is one product of MDBA Inc.'s advocacy. While the MDBA Inc. will continue to press for improvements in all relevant areas, the RCMDB is one of the initiatives designed to make this happen. The MDBA Inc. supports the Independent Interpreter Referral Service (IIRS) as a service provider for RCMDB. The IIRS provides Interpreter/Intervenor Services to Deaf-Blind Manitobans and is congruent with the philosophy of the MDBA Inc.

stained glass ballProvincial Outreach Program for Deafblind Children. Contact info only.

stained glass ballRetinitis Pigmentosa Eye Research Foundation, New Brunswick Chapter. The Foundation assists people who suffer from RP, family member and friends. Promotes public awareness in the Atlantic Provinces. Offs regular meetings a support group, public awareness, up to date information and fundraising for research.

stained glass ballRoschaert, C.signing hands

golden marble bullet(2007, June 1). Wild Wild West - ABC story. Wild, wild west.

golden marble bullet(2007, April 22). The A-Z's of DeafBlindhood. This is Coco and I'm signing an alphabet story about me being Deafblind through a journey.

stained glass ballRotary Cheshire Apartments. Apartments for Deaf-Blind Adults living independently. Tenants live independently in a safe and secure environment with access to support services which facilitate integration into the community and pursuit of individual interests and goals.

stained glass ballSaskatchewan Group Homes. Contact info only.

stained glass ballService providers for Deafblind people in Canada.

stained glass ballTactile The World.signing handsAdvocacy, Articles & Published Studies, Blogroll, Contributing Writers, Education & Training Events, Medical Studies & Research Organizations, Profiles, Rants, SSP & Intervenor Stories, Technology & Equipment, Videos, World News, World Wide Web.

stained glass ballThe Canadian Deafblind and Rubella Association / L’Association Canadienne de la Surdicécité et de la Rubeole. Promote deafblindness as a unique disability. Promote lifelong Intervention for Canadians who are deafblind. Encourage & support the development of programs to meet the CDBRA principles for deafblind persons. Support a wide range of advocacy efforts. Develop effective partnerships with individuals, families, foundations, government and non-government agencies.

stained glass ballThe Canadian National Society for the Deaf-Blind is very pleased to be able to offer access to the recently completed report, "Study of Deaf-Blind Demographics and Services in Canada".

stained glass ballThe Intervenor Organization of Ontario (IOO). Mission Statement: The IOO is comprised of intervenors and is committed to providing advocacy and support on behalf of its members. Through the provision of a Code of Ethics, professionals standards and opportunities for career development, the IOO is dedicated to providing quality intervention services to deaf-blind persons.

stained glass ballUniversity of Toronto, Adaptive Technology Resource Centre advances information technology that is accessible to all; through research, development, education, proactive design consultation and direct service.

Chile (Chile)

stained glass ball¿Cómo se comunican las personas sordo ciegas?

China (中国)

stained glass ballBeijing Declaration on the Rights of People with Disabilities in the New Century. Adopted on 12 March 2000.

stained glass ballBoletín Internacional de Prensa para Personas Sordociegas. (Mayo 2001). Los invisibles sordociegos chinos.

Colombia (Colombia)

Cro